RP Fighting Blindness (RPFB) Families Conference
Saturday 6th May – Sunday 7th May 2017The Hilton HotelTimbold Drive, Kents Hill ParkMilton KeynesMK7 6HL
RP Fighting Blindness would like to invite you to attend our Families Conference.
This is a residential weekend for families who are living with an Inherited Retinal Dystrophy (IRD) and syndrome, including retinitis pigmentosa (RP) and Usher syndrome.
The event will be held at the Hilton Hotel in Milton Keynes.
The conference will officially start at 9am on Saturday 6th May, with registration available from 8.30am and is due to finish at 2.30pm on Sunday 7th May.
To allow for travel and to enable families to check into the hotel and settle in the day before, arrival times will start from 4pm onwards on Friday 5th May. After dinner in the evening there will be an ‘icebreaker’ session where families can get to know one another and mingle prior to the start of the conference.
We have a full weekend programme which will include research updates, patient support, workshops on education, employment and access to services. There is a crèche for young children and activities for older children.
This is a great opportunity to find out more about your condition, speak to professionals regarding medical research, support services, your child’s education, ando put your questions to the experts, meet other people and engage with other families and make new friends.
As a result of the weekend we hope to take your experiences, views and needs, and deliver some outcomes which lead to new and improved services for families.
We have secured funding for 40 families, so we would ask that you register as soon as possible to avoid disappointment.
Funded placed include accommodation for two nights, meals and activities and are open to families with a child/children affected by a retinal dystrophy.
Places are limited, so please do contact us to register your interest!
If you would like to attend the event or you have any questions, please contact the RPFB office for further details.
Telephone: 01280 821334
Post: RPFB, P.O Box 350, Buckingham MK18 1GZ